FROM DIAGNOSIS TO COPING: A JOURNEY WITH PARENTS IN THE COURSE OF THE DISABILITY OF THEIR CHILDREN

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RAEIS DANA M.; KAMALI MOHAMMAD; TABATABAEINIA S.M.; SHAFAROUDI N.

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Journal: Archives of Rehabilitation (Journal of Rehabilitation) Year:2009 | Volume:10 | Issue:1 (37) Page(s): 42-51

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Information Journal Paper

Title

FROM DIAGNOSIS TO COPING: A JOURNEY WITH PARENTS IN THE COURSE OF THE DISABILITY OF THEIR CHILDREN

Author(s)

RAEIS DANA M. | KAMALI MOHAMMAD | TABATABAEINIA S.M. | SHAFAROUDI N. | Issue Writer Certificate

Keywords

DISABILITYQ3

PARENTSQ2

COPINGQ3

QUALITATIVE RESEARCHQ1

PHENOMENOLOGYQ2

Abstract

Objective: The aim of this study was to examine PARENTS' experiences, expectations, and needs regarding service providers and their roles in the process of copping with a child with a DISABILITY.Materials & Methods: A qualitative phenomenological method has been designed for this study. Nine PARENTS of children with variety of disabilities including children with cerebral palsy, intellectual disabilities, and autism were purposefully selected and semi-structured in-depth interview were conducted. Interviews records were transcribed and analyzed using Van Manen's method. Results: Findings were classified in four domains as experienced and perceived by the participants of the study: medical, consoling, rehabilitation and education services. Problems accessing information were due to interpersonal relationship skills, early diagnosis, and frank and honest communication. Consoling are two folds support and education. In rehabilitation promote (progress) of child's function, to possible of observation and comparison with other children with similar situation and attitude of therapists were emerged. Education included: present and future.Conclusion: Findings indicate that the families are faced with ongoing challenges when receiving professional services. These findings revealed that early diagnosis and intervention, empathic relationships, and appropriate consultation will help the parent’s better cope with their children disabilities and become more positively involved in the care and development of their children with DISABILITY.

Cites

A COMPARISON OF THE AMOUNT OF WORRY, HOPE AND MEANING OF LIFE IN THE MOTHERS OF DEAF CHILDREN, CHILDREN WITH AUTISM, AND CHILDREN WITH LEARNING DISABILITY

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APA: Copy

RAEIS DANA, M., KAMALI, MOHAMMAD, TABATABAEINIA, S.M., & SHAFAROUDI, N.. (2009). FROM DIAGNOSIS TO COPING: A JOURNEY WITH PARENTS IN THE COURSE OF THE DISABILITY OF THEIR CHILDREN. ARCHIVES OF REHABILITATION (JOURNAL OF REHABILITATION), 10(1 (37)), 42-51. SID. https://sid.ir/paper/43460/en

Vancouver: Copy

RAEIS DANA M., KAMALI MOHAMMAD, TABATABAEINIA S.M., SHAFAROUDI N.. FROM DIAGNOSIS TO COPING: A JOURNEY WITH PARENTS IN THE COURSE OF THE DISABILITY OF THEIR CHILDREN. ARCHIVES OF REHABILITATION (JOURNAL OF REHABILITATION)[Internet]. 2009;10(1 (37)):42-51. Available from: https://sid.ir/paper/43460/en

IEEE: Copy

M. RAEIS DANA, MOHAMMAD KAMALI, S.M. TABATABAEINIA, and N. SHAFAROUDI, “FROM DIAGNOSIS TO COPING: A JOURNEY WITH PARENTS IN THE COURSE OF THE DISABILITY OF THEIR CHILDREN,” ARCHIVES OF REHABILITATION (JOURNAL OF REHABILITATION), vol. 10, no. 1 (37), pp. 42–51, 2009, [Online]. Available: https://sid.ir/paper/43460/en

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