DESIGNING AND CREATING PERSONAL ELECTRONIC HEALTH RECORDS FOR THALASSEMIA MAJOR PATIENTS

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MOEIL TABAGHDEHI KHADIJE; GHAZISAEEDI MARJAN; SHAHMORADI LEILA; KARAMI HOSSEIN

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Journal: Payavard Salamat Year:2018 | Volume:11 | Issue:5 Page(s): 567-577

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Title

DESIGNING AND CREATING PERSONAL ELECTRONIC HEALTH RECORDS FOR THALASSEMIA MAJOR PATIENTS

Author(s)

MOEIL TABAGHDEHI KHADIJE | GHAZISAEEDI MARJAN | SHAHMORADI LEILA | KARAMI HOSSEIN | Issue Writer Certificate

Keywords

THALASSEMIA MAJORQ1

THALASSEMIA PATIENTQ1

PERSONAL HEALTH RECORDQ1

DATA ELEMENTQ1

Abstract

Background and Aim: Thalassemia is a chronic disease which is extremely expensive, complex and debilitating. The management skill of THALASSEMIA PATIENTs should be enhanced to minimize the risk of disease complications. The main purpose of this study was to develop personal electronic health records for THALASSEMIA MAJOR patients.Materials and Methods: This is a developmental applied study which was conducted to develop a personal electronic health record for THALASSEMIA MAJOR.First, a questionnaire was prepared to determine the DATA ELEMENTs and was filled by Hematology and Oncology professionals in the country (110 persons). Then, based on the results of needs analysis, the system was designed using PHP programming language and MySQL database and was evaluated by 50 THALASSEMIA PATIENTs who referred to the Thalassemia Clinic of Bu Ali Sina Hospital of Mazandaran University of Medical of Sciences during the second half of the month of Aban.Finally, a standard questionnaire of usability and user satisfaction assessment was distributed among them.Results: Usability evaluation of the system showed that patients evaluated the system at a good level with a mean rating of 7.91 (out of 9 points).Conclusion: The web-based systems can be used to help THALASSEMIA PATIENTs to control injection and reduce the complications of the disease and to promote health.

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APA: Copy

MOEIL TABAGHDEHI, KHADIJE, GHAZISAEEDI, MARJAN, SHAHMORADI, LEILA, & KARAMI, HOSSEIN. (2018). DESIGNING AND CREATING PERSONAL ELECTRONIC HEALTH RECORDS FOR THALASSEMIA MAJOR PATIENTS. PAYAVARD-SALAMAT, 11(5 ), 567-577. SID. https://sid.ir/paper/149719/en

Vancouver: Copy

MOEIL TABAGHDEHI KHADIJE, GHAZISAEEDI MARJAN, SHAHMORADI LEILA, KARAMI HOSSEIN. DESIGNING AND CREATING PERSONAL ELECTRONIC HEALTH RECORDS FOR THALASSEMIA MAJOR PATIENTS. PAYAVARD-SALAMAT[Internet]. 2018;11(5 ):567-577. Available from: https://sid.ir/paper/149719/en

IEEE: Copy

KHADIJE MOEIL TABAGHDEHI, MARJAN GHAZISAEEDI, LEILA SHAHMORADI, and HOSSEIN KARAMI, “DESIGNING AND CREATING PERSONAL ELECTRONIC HEALTH RECORDS FOR THALASSEMIA MAJOR PATIENTS,” PAYAVARD-SALAMAT, vol. 11, no. 5 , pp. 567–577, 2018, [Online]. Available: https://sid.ir/paper/149719/en

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