مرکز اطلاعات علمی Scientific Information Database (SID) - Trusted Source for Research and Academic Resources

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Information Journal Paper

Title

EXPERIENCES OF LIVING WITH NEUROFIBROMATOSIS IN A YOUNG WOMAN: A CASE REPORT

Pages

  44-50

Abstract

 Introduction: Neurofibromatosis is a rare autosomal dominant genetic disease causing range of symptoms, especially skin lesions, and seriously affects the patients’ quality of life. The aim of this study was to describe the experiences of living with neurofibromatosis type 1 (NF1).Case Description: This qualitative case report examined the experiences of living with NF1 in a 25-year-old woman. The data were collected through interactive semi-structured interviews and analyzed by Van Manen phenomenological approach. Strategies to ensure the rigor of study were prolonged engagement, triangulation, and member checking.Results: Data analysis revealed two main issues, including "fear of the unknown", and "try to cope with". Hiding, dependent on my family, joining social networks, and hope for a cure were other important issues for this patient.Conclusion: Family and social support groups could help the patients in dealing with loneliness, fear and anxiety, and find herself in caring climate with mutual understanding and empathetic connection.

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    Cite

    APA: Copy

    REZAPOOR ESFAHANI, MONA, JOUYBARI, LEILA, SANAGOO, AKRAM, & ARAGHIAN MOJARAD, FERESHTEH. (2017). EXPERIENCES OF LIVING WITH NEUROFIBROMATOSIS IN A YOUNG WOMAN: A CASE REPORT. NEUROSCIENCE JOURNAL OF SHEFAYE KHATAM, 5(3), 44-50. SID. https://sid.ir/paper/258149/en

    Vancouver: Copy

    REZAPOOR ESFAHANI MONA, JOUYBARI LEILA, SANAGOO AKRAM, ARAGHIAN MOJARAD FERESHTEH. EXPERIENCES OF LIVING WITH NEUROFIBROMATOSIS IN A YOUNG WOMAN: A CASE REPORT. NEUROSCIENCE JOURNAL OF SHEFAYE KHATAM[Internet]. 2017;5(3):44-50. Available from: https://sid.ir/paper/258149/en

    IEEE: Copy

    MONA REZAPOOR ESFAHANI, LEILA JOUYBARI, AKRAM SANAGOO, and FERESHTEH ARAGHIAN MOJARAD, “EXPERIENCES OF LIVING WITH NEUROFIBROMATOSIS IN A YOUNG WOMAN: A CASE REPORT,” NEUROSCIENCE JOURNAL OF SHEFAYE KHATAM, vol. 5, no. 3, pp. 44–50, 2017, [Online]. Available: https://sid.ir/paper/258149/en

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