Occupational Performance Priorities of Children With CerebralPalsy From the Parents’ Perspective

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JALILI NASRIN; NASR ZAHRA; Zare Rouhollah; SATTARI MAHSA; HOSSEINI ALI

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Journal: Archives of Rehabilitation (Journal of Rehabilitation) Year:2019 | Volume:19 | Issue:4 Page(s): 370-379

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Title

Occupational Performance Priorities of Children With CerebralPalsy From the Parents’ Perspective

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Keywords

Canadian occupationalperformancemeasurementQ1

ParticipationQ2

ClientcenteredQ1

Parents ofchildren with CerebralPalsyQ1

Abstract

Objective Cerebral Palsy (CP) is a group of non-progressive disorders in a developing brain that resultsin motor problems and other limitations in daily living activities. The presence of motor functions inthese children reduces their Participation in daily activities. This is one of the important aspects of thechild’ s health and development, especially the child’ s physical and psychological development. Participationin social activities promotes life satisfaction. Besides, family has a prominent role in identifyingand supplying the child’ s needs. In other words, family plays an essential role in ensuring the health andwell-being of their children. Thus, provisions of growth-related health services has now changed froma child-cantered model into a family-cantered model. As a result, it is very important to understand theparents’ priorities about Participation of their children in the daily activities and providing appropriateclient-center services. Materials & Methods In this descriptive-analytic study, 78 children and teenagers with CP aged 3-18 yearswithout psychiatric problems and their parents from Yazd City, Iran had participated. The samples wereselected by convenience sampling method, from clients of private and public rehabilitation centers inYazd Province. In this regard, one state and two private centers were randomly selected and the studysamples were selected from the clients referred to the centers. Parents' priorities for Participation oftheir children in activities of daily living were found through semi-structured interviews. In these interviews, we used Canadian occupational performance measure to evaluate the child's level of occupationalperformance and parents’ satisfaction in the three areas of self-care, productiveness, leisure fromthe parents’ perspective. In addition, the level of gross motor performance was evaluated based on theGross Motor Function Classification System (GMFCS) at five levels. In the Iranian society, the validityof Canadian occupational performance measure for each of three areas of occupational performancehas been reported to be between 9. 75 and 3. 75 and the reliability level for the three domains reportedabove 0. 78. The statistical analysis of data was performed in SPSS V. 16. Descriptive statistics and oddsratio were used for analyzing the data. Results the children’ Mean± SD age was 8. 12± 4. 22 years. The first priority reported by the parents wasself-care. Mobility was known as the second important priority in everyday life for children. The resultsobtained from the statistical analysis showed no significant relationship between age and different motorlevels (P≥ 0. 05). Conclusion Parents reported functional priorities in similar performance aspects by all age groups andGMFCS levels in Cerebral Palsy children. The first priority was related to self-care. This reflects the desireof the parents to children’ doing self-care activities, which not only reduces care pressure, but also leadsto promotion in social Participation and independence in individual life. The next priority was mobilityand the reason can be attributed to the fact that children with CP need mobility to manage their dailylife activities.

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APA: Copy

JALILI, NASRIN, NASR, ZAHRA, Zare, Rouhollah, SATTARI, MAHSA, & HOSSEINI, ALI. (2019). Occupational Performance Priorities of Children With CerebralPalsy From the Parents’ Perspective. ARCHIVES OF REHABILITATION (JOURNAL OF REHABILITATION), 19(4 ), 370-379. SID. https://sid.ir/paper/43447/en

Vancouver: Copy

JALILI NASRIN, NASR ZAHRA, Zare Rouhollah, SATTARI MAHSA, HOSSEINI ALI. Occupational Performance Priorities of Children With CerebralPalsy From the Parents’ Perspective. ARCHIVES OF REHABILITATION (JOURNAL OF REHABILITATION)[Internet]. 2019;19(4 ):370-379. Available from: https://sid.ir/paper/43447/en

IEEE: Copy

NASRIN JALILI, ZAHRA NASR, Rouhollah Zare, MAHSA SATTARI, and ALI HOSSEINI, “Occupational Performance Priorities of Children With CerebralPalsy From the Parents’ Perspective,” ARCHIVES OF REHABILITATION (JOURNAL OF REHABILITATION), vol. 19, no. 4 , pp. 370–379, 2019, [Online]. Available: https://sid.ir/paper/43447/en

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