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Title

Implementation of regional COVID-19 registry in Hormozgan (RCovidRH), Iran: Rationale and study protocol

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Abstract

 Background: The rapid outbreak of COVID-19 has resulted in a global pandemic in 2020. Information sources such as disease Registries through accessing quality, valid, accurate, and timely data empower researchers and health authorities to study and develop appropriate actions. Our study describes the protocol for implementation of regional COVID-19 registry in Hormozgan province (RCovidRH). Methods: We followed approved phases for the development of RCovidRH to cover the population in Hormozgan. Missioned to develop and implement the protocol, the registry’ s steering committee was made up of 10 members from subject fields of the registry at the core and 5 subgroups. The main purpose of the registry is to provide a comprehensive information profile of demographic, clinical, laboratory, imaging, and treatment data of confirmed and probable COVID-19 patients in Hormozgan. The data is retrospectively and prospectively collected. Case report form (CRF) was mainly based on International Severe Acute Respiratory and Emerging Infection Consortium (ISARIC) CRF. A web-based, 2-language software was also developed to facilitate data collection and storage. Data analysis is to be conducted with collaboration of clinical physicians, data-mining specialists, and epidemiologists after reaching appropriate sample size. Results: We included data related to demographic and identification, onset and admission, signs and symptoms at hospital admission, admission signs and symptoms, comorbidities, pathogen testing, assessment, laboratory, imaging, complications, treatment and medication, and outcomes. We found this registry was limited by incomplete clinical data for small fraction of outpatients, incomplete or inaccurate address by referred people due to fear of social rejection, delay in data entry at the facilities due to workload. Conclusion: This registry via organizing clinical and epidemiological COVID-19 data increases the potentiality of joint studies. Recognition and coordination of a registry is highly important to solve its limitations to collect data. Other universities and provinces can apply our model to develop COVID-19 Registries or data sets for this disease.

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    APA: Copy

    KHORRAMI, FARID, SHAHI, MEHRABAN, DAVARIDOLATABADI, NASRIN, ALISHAN KARAMI, NADER, HASSANI AZAD, MEHDI, Jafariyan, Fereshteh, & SHEIKHTAHERI, ABBAS. (2020). Implementation of regional COVID-19 registry in Hormozgan (RCovidRH), Iran: Rationale and study protocol. MEDICAL JOURNAL OF THE ISLAMIC REPUBLIC OF IRAN (MJIRI), 34(1), 0-0. SID. https://sid.ir/paper/749704/en

    Vancouver: Copy

    KHORRAMI FARID, SHAHI MEHRABAN, DAVARIDOLATABADI NASRIN, ALISHAN KARAMI NADER, HASSANI AZAD MEHDI, Jafariyan Fereshteh, SHEIKHTAHERI ABBAS. Implementation of regional COVID-19 registry in Hormozgan (RCovidRH), Iran: Rationale and study protocol. MEDICAL JOURNAL OF THE ISLAMIC REPUBLIC OF IRAN (MJIRI)[Internet]. 2020;34(1):0-0. Available from: https://sid.ir/paper/749704/en

    IEEE: Copy

    FARID KHORRAMI, MEHRABAN SHAHI, NASRIN DAVARIDOLATABADI, NADER ALISHAN KARAMI, MEHDI HASSANI AZAD, Fereshteh Jafariyan, and ABBAS SHEIKHTAHERI, “Implementation of regional COVID-19 registry in Hormozgan (RCovidRH), Iran: Rationale and study protocol,” MEDICAL JOURNAL OF THE ISLAMIC REPUBLIC OF IRAN (MJIRI), vol. 34, no. 1, pp. 0–0, 2020, [Online]. Available: https://sid.ir/paper/749704/en

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