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Information Journal Paper

Title

Organizational Factors Affecting Parents’,Participation in Decision-Making for Neonates With Life-threatening Conditions: A Grounded Theory Study

Author(s)

 Banazadeh Marjan | HAGHDOOST OSKOUIE SAIDE FATEMEH | Issue Writer Certificate 

Pages

  28-45

Abstract

 Background & Aims Parental participation in Decision-making for Neonates with Life-threatening conditions is morally and ethically approved. The health care team in the neonatal intensive care units is not prepared to involve parents in these decisions. Identifying factors affecting parental participation in Decision-making can lead to removing the barriers and improving Parents’,participation. The present study aimed to identify Organizational factors influencing Parents’,participation in Decision-making for Neonates with Life-threatening conditions. Materials & Methods This study is part of a comprehensive project based on Corbin and Straus’, s approach to grounded theory (GT) methodology (Corbin & Strauss, 2015) explored the process of parental participation in DM for Neonates with LTC. Participants included 23 people (10 parents, 10 healthcare providers, 1 official in the Neonatal Health Office of the Ministry of Health and Medical Education, 1 professor of Jurisprudence and Principles of Islamic Law, and 1 insurance agent). The study field included level III neonatal intensive care units of 4 teaching hospitals. Data were collected using in-depth, semistructured interviews and observation and simultaneously were analyzed through constant comparison utilizing the approach of Corbin and Strauss, 2015. The core category and the related categories reflecting contextual and structural factors, Parents’,strategies, and the outcome of the adopted strategies were identified. The contextual and structural classification reflected various factors affecting Parents’,participation in DM. Since it was impossible to publish all findings in one article, the current study focused on the Organizational factors influencing Parents’,participation in DM. Results Organizational factors affecting the process of parental participation in Decision-making consisted of 5 main categories, including 1) power imbalances, 2) ethics committees’,deficiencies, 3) hospital regulations deficiencies, 4) resource constraints, and 5) ongoing hospitalization, the only choice. Conclusion Organizational factors play an important role in parental participation in Decision-making. Providing parents of Neonates with Life-threatening conditions with accommodation and, developing instructions to encourage the presence of parents in the hospital, creating rules for selecting NICU nurses is necessary. Employing an interdisciplinary team of psychologists, social workers, and trained individuals to provide parents with spiritual care is recommended. Appointing hospital ethics committees to investigate cases of critically ill infants and employing experienced and knowledgeable ethicians about the end-of-life issues in these committees are also recommended.

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    APA: Copy

    Banazadeh, Marjan, & HAGHDOOST OSKOUIE, SAIDE FATEMEH. (2022). Organizational Factors Affecting Parents’,Participation in Decision-Making for Neonates With Life-threatening Conditions: A Grounded Theory Study. IRAN JOURNAL OF NURSING (IJN), 35(135 ), 28-45. SID. https://sid.ir/paper/992201/en

    Vancouver: Copy

    Banazadeh Marjan, HAGHDOOST OSKOUIE SAIDE FATEMEH. Organizational Factors Affecting Parents’,Participation in Decision-Making for Neonates With Life-threatening Conditions: A Grounded Theory Study. IRAN JOURNAL OF NURSING (IJN)[Internet]. 2022;35(135 ):28-45. Available from: https://sid.ir/paper/992201/en

    IEEE: Copy

    Marjan Banazadeh, and SAIDE FATEMEH HAGHDOOST OSKOUIE, “Organizational Factors Affecting Parents’,Participation in Decision-Making for Neonates With Life-threatening Conditions: A Grounded Theory Study,” IRAN JOURNAL OF NURSING (IJN), vol. 35, no. 135 , pp. 28–45, 2022, [Online]. Available: https://sid.ir/paper/992201/en

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