Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)

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TALEBI SAEEDEH; SAYEDI SEYED JAVAD; Ranjbar Golnaz; KHADEM REZAIYAN MAJID; Barghchi Hanieh; Ensieh Kazemisefat Golnaz; Safarian Mahammad; KIANIFAR HAMID REZA

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Journal: Journal of Pediatric Perspectives Year:2021 | Volume:9 | Issue:12 (96) Page(s): 15003-15014

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Title

Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R)

Author(s)

Keywords

Child

Cystic Fibrosis

Health-related quality of life (HRQOL)

Parents

Quality of Life

Abstract

Background: The present study aimed to translate the Cystic Fibrosis questionnaire-revised (CFQ-R) for Children with Cystic Fibrosis (CF) into Persian and evaluate the reliability and validity of the instrument. Methods: About eighty individuals including Children and their Parents were enrolled in this cross-sectional study. Demographic characteristic and disease severity parameters of the subjects were recorded. After translation of the CFQ-R to Persian, the participants completed the parent or Child translated version of the CFQ-R, as well as the PedsQL 4. 0. Reliability and validity analyses were, then, carried out. Results: The forward-backward translation was employed in this study. The total content validity ratio (CVR) and content validity index (CVI) were above 0. 8 and at least 0. 49, respectively. The internal reliability of each domain was acceptable (Cronbach alpha coefficients 0. 65-0. 91). Appropriate domains of the CFQ-R and pediatric Quality of Life inventory (PedsQL 4. 0) were correlated, indicating the acceptable concurrent validity (r=0. 5-0. 7). In addition, test-retest reliability was assessed using correlation-coefficients, which were considered significant for both the Child version (r=0. 88,P˂, 0. 001) and parent version (r=0. 78,P˂, 0. 001). Moreover, the CFQ-R scales showed significant correlations with the clinical indices and the construct of disease severity in the Child and parent version. Conclusion: According to the results, the Persian version of the Child and parent CFQ-R has acceptable reliability and validity indices,and may be suggested to be used in clinical trials for the clinical evaluations and follow-ups of Iranian Children with CF.

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APA: Copy

TALEBI, SAEEDEH, SAYEDI, SEYED JAVAD, Ranjbar, Golnaz, KHADEM REZAIYAN, MAJID, Barghchi, Hanieh, Ensieh Kazemisefat, Golnaz, Safarian, Mahammad, & KIANIFAR, HAMID REZA. (2021). Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R). INTERNATIONAL JOURNAL OF PEDIATRICS, 9(12 (96)), 15003-15014. SID. https://sid.ir/paper/993828/en

Vancouver: Copy

TALEBI SAEEDEH, SAYEDI SEYED JAVAD, Ranjbar Golnaz, KHADEM REZAIYAN MAJID, Barghchi Hanieh, Ensieh Kazemisefat Golnaz, Safarian Mahammad, KIANIFAR HAMID REZA. Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R). INTERNATIONAL JOURNAL OF PEDIATRICS[Internet]. 2021;9(12 (96)):15003-15014. Available from: https://sid.ir/paper/993828/en

IEEE: Copy

SAEEDEH TALEBI, SEYED JAVAD SAYEDI, Golnaz Ranjbar, MAJID KHADEM REZAIYAN, Hanieh Barghchi, Golnaz Ensieh Kazemisefat, Mahammad Safarian, and HAMID REZA KIANIFAR, “Towards the Validation of the Persian Version of the Revised Cystic Fibrosis Quality of Life Questionnaire for children and parents (CFQ-R),” INTERNATIONAL JOURNAL OF PEDIATRICS, vol. 9, no. 12 (96), pp. 15003–15014, 2021, [Online]. Available: https://sid.ir/paper/993828/en

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