QUALITY OF LIFE IN A GROUP OF IRANIAN PATIENTS WITH NEUROFIBROMATOSIS TYPE 1 WITH CUTANEOUS EXPRESSIONS

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SOGHI IDA; SAEEDI SAMIRA; SANAGOO AKRAM; JOUYBARI LEILA; EBRAHIMIRAD MOHAMAD; MEHRAVAR FATEMEH

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Journal: JOURNAL OF MAZANDARAN UNIVERSITY OF MEDICAL SCIENCES Year:2018 | Volume:28 | Issue:162 Page(s): 95-103

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Title

QUALITY OF LIFE IN A GROUP OF IRANIAN PATIENTS WITH NEUROFIBROMATOSIS TYPE 1 WITH CUTANEOUS EXPRESSIONS

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Keywords

QUALITY OF LIFEQ2

NEUROFIBROMATOSIS 1Q1

GENETIC DISEASESQ1

IRANQ2

Abstract

Background and purpose: Neurofibromatosis type 1 (NF1) is a dominant genetic disorder ofthe skin and the nervous system that is seen in equal proportions in both sexes. The incidence of NF1 isabout one in every 3, 000. Chronic skin diseases have a significant impact on the individual's mentalimage and also affect mental health and QUALITY OF LIFE. The aim of this study was to investigate the qualityof life in a group of IRANian patients with NF1 suffering from skin problems. Materials and methods: A cross-sectional, descriptive-analytical study was conducted in 2015-2017 in 193 patients with NF1 attending the IRANian Neurofibromatosis Society, using convenientsampling. Data were collected by Skindex-16 QUALITY OF LIFE measure which is composed of 16 questionsin three dimensions (emotions, symptoms, and performance). Data were analyzed using SPSS applyingPearson Correlation and ANOVA. Results: Of 193 patients with NF1, 69. 5% (n=132) were females. The mean age of patients was31. 58± 9. 21. The mean score for QUALITY OF LIFE was 44. 88± 22. 06. In the domains of symptoms, emotions, and performance the mean scores were 6. 57± 4. 99, 24. 76± 11. 64, and 13. 64± 8. 86, respectively. Quality oflife was not statistically correlated with age and sex, but the relationship between the domain ofsymptoms with age was found to be significant (P=0. 01). Conclusion: The results showed that patients with neurofibromatosis have moderate quality oflife and lower quality in terms of emotions and performance. These findings can be used to provide betterhealth care for this group of patients and improve their QUALITY OF LIFE.

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APA: Copy

SOGHI, IDA, SAEEDI, SAMIRA, SANAGOO, AKRAM, JOUYBARI, LEILA, EBRAHIMIRAD, MOHAMAD, & MEHRAVAR, FATEMEH. (2018). QUALITY OF LIFE IN A GROUP OF IRANIAN PATIENTS WITH NEUROFIBROMATOSIS TYPE 1 WITH CUTANEOUS EXPRESSIONS. JOURNAL OF MAZANDARAN UNIVERSITY OF MEDICAL SCIENCES, 28(162 ), 95-103. SID. https://sid.ir/paper/45044/en

Vancouver: Copy

SOGHI IDA, SAEEDI SAMIRA, SANAGOO AKRAM, JOUYBARI LEILA, EBRAHIMIRAD MOHAMAD, MEHRAVAR FATEMEH. QUALITY OF LIFE IN A GROUP OF IRANIAN PATIENTS WITH NEUROFIBROMATOSIS TYPE 1 WITH CUTANEOUS EXPRESSIONS. JOURNAL OF MAZANDARAN UNIVERSITY OF MEDICAL SCIENCES[Internet]. 2018;28(162 ):95-103. Available from: https://sid.ir/paper/45044/en

IEEE: Copy

IDA SOGHI, SAMIRA SAEEDI, AKRAM SANAGOO, LEILA JOUYBARI, MOHAMAD EBRAHIMIRAD, and FATEMEH MEHRAVAR, “QUALITY OF LIFE IN A GROUP OF IRANIAN PATIENTS WITH NEUROFIBROMATOSIS TYPE 1 WITH CUTANEOUS EXPRESSIONS,” JOURNAL OF MAZANDARAN UNIVERSITY OF MEDICAL SCIENCES, vol. 28, no. 162 , pp. 95–103, 2018, [Online]. Available: https://sid.ir/paper/45044/en

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